Organizations and networks that may help families affected by childhood cancer understand patient rights, access appropriate healthcare, find advocacy support, and navigate family and healthcare systems across Asia.
The organizations below work on childhood cancer advocacy, patient and family support, access to healthcare, policy, and rights-related issues. Some provide direct family services, while others focus on advocacy, information, referrals, or improving healthcare systems. Always check the organization's official website for current services and eligibility.
The Asian branch of the International Society of Paediatric Oncology brings together healthcare professionals, advocates, and survivors. Its work includes education, capacity building, policy engagement, and promoting equitable access to quality childhood cancer care.
A global parent-driven organization representing childhood cancer support groups and patient organizations, including many organizations across Asia. Its advocacy includes access to essential medicines, health coverage, family engagement, and stronger health policies.
The Asian Pediatric Hematology and Oncology Group supports collaboration and professional development in childhood cancer care across Asia, with a focus on improving diagnosis, treatment, and access to appropriate care.
A regional program supporting childhood cancer care across Asia and the Pacific through partnerships with healthcare institutions. Its work includes strengthening diagnosis, treatment, supportive care, and access to quality services.
A Bangladesh-based childhood cancer organization providing family support, psychosocial services, palliative care, and advocacy. Its work also includes policy advocacy related to childhood cancer.
A free information resource from Childhood Cancer International offering practical information for children with cancer, survivors, parents, and families. It can help families find information about treatment, support, survivorship, rights, and navigating childhood cancer.
A Japanese organization supporting children with cancer and their families and working to improve the environment surrounding childhood cancer. Its activities include family support, information, and advocacy.
An Israeli organization supporting children with cancer and their families. Its services include practical, emotional, and family assistance during treatment and recovery, helping families navigate challenges connected with childhood cancer.
A regional coalition working to promote and protect children's rights across Asia. Its work includes advocacy, policy engagement, research, and strengthening cooperation among organizations working on child rights issues.
A Philippine organization supporting children and young people with cancer and their families. Its work includes family assistance, education, survivorship support, advocacy, and efforts to improve the lives of children affected by cancer.
A Malaysian cancer organization providing cancer information, support services, education, and advocacy. It is part of the childhood cancer support network in Asia and can serve as a starting point for families seeking cancer-related information and support in Malaysia.
The World Health Organization's global childhood cancer initiative works with countries and partners to improve access to quality childhood cancer care, strengthen health systems, and reduce inequalities. Its resources can help families understand broader national and regional efforts concerning childhood cancer.
Legal rights, public healthcare systems, insurance rules, education protections, social benefits, and available family services vary significantly between Asian countries. Some organizations listed here provide direct family assistance, while others focus on advocacy, healthcare access, information, policy, or referrals. Before contacting an organization, visit its official website and check which services are currently available for your family and location.
Your child's healthcare team, hospital social worker, patient advocate, or local childhood cancer organization may also be able to help your family understand available rights, benefits, and local support resources.