Organizations and networks that may help families affected by childhood cancer understand patient rights, access appropriate healthcare, navigate European systems, and find advocacy or legal support across Europe.
The organizations below work on patient rights, childhood cancer advocacy, access to healthcare, policy, family support, and rights-related information. Some may provide direct assistance or referrals, while others focus on advocacy and information. Always check the organization's official website for current services and eligibility.
The European Society for Paediatric Oncology connects families, patient organizations, healthcare professionals, and policymakers. Its work includes advocacy for better policies and access to care for children and adolescents with cancer across Europe.
Childhood Cancer International Europe represents parents, patients, and survivors and works to improve access to high-quality childhood cancer care, reduce inequalities, and ensure that families have a voice in European healthcare and policy discussions.
A European Reference Network for paediatric cancer. Its patient and family resources explain how patient representatives participate in the network and how European specialists collaborate to improve access to appropriate childhood cancer care.
A European alliance of rare disease organizations that works on patient rights, access to healthcare, social policies, and cross-border issues affecting people and families living with rare diseases. It can also connect families with national patient organizations.
A pan-European organization representing cancer patients, carers, and survivors. Its work includes patient rights, access to treatment, healthcare policy, and improving the involvement of people affected by cancer in European decision-making.
A European network working to strengthen children's rights and influence policies affecting children and families. Its resources can be useful when families need broader information about children's rights and social protections within Europe.
Austria's childhood cancer organization provides support for children with cancer and their families and works with families on practical and social issues connected with childhood cancer.
A Dutch childhood cancer organization supporting children, young people, survivors, and families. It provides information and support and represents the interests of families affected by childhood cancer.
A Portuguese organization supporting children and young people with cancer and their families. It provides information, family support, and advocacy related to childhood cancer and the needs of affected families.
A Romanian organization supporting children and families affected by cancer and other serious illnesses. Its work includes family support, information, advocacy, and helping families navigate challenges connected with treatment and social services.
Serbia's national parents' organization for children with cancer works to support families and advocate for better conditions, services, and rights for children undergoing cancer treatment and their parents.
A Moldovan patient organization supporting children with leukemia and their families. The organization has also participated in advocacy efforts concerning access to paediatric oncology care and the needs of families in Moldova.
Legal rights, public benefits, healthcare rules, education protections, insurance systems, and available family services vary between European countries. Some organizations listed here provide direct assistance, while others focus on advocacy, patient rights, information, benefits navigation, or referrals. Before contacting an organization, visit its official website and check which services are currently available for your family and location.
Your child's healthcare team, hospital social worker, patient advocate, or national childhood cancer organization may also be able to help your family understand available rights, benefits, and local legal or advocacy resources.